Support Groups for Limb Differences & Disability Communities

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These groups have been helpful for asking questions, sharing concerns, and hearing how other families have handled similar challenges. Most of them are welcoming communities for parents, caregivers, and individuals living with limb differences.

Nub Club of Ohio

Nub Club of Ohio is a local community group for kids with limb differences and their families. The group hosts casual get-togethers, playdates, and events at parks and family-friendly spaces around Central Ohio. It's a great way for kids to meet others like them and for families to connect in person. You can also read more about the group here.

So Every BODY Can Move (Ohio)

So Every BODY Can Move – Ohio is a grassroots advocacy group working to improve access to activity-specific prosthetic and orthotic care for people with limb differences and mobility impairments. They believe movement is medicine and that physical activity should be accessible to everyone.

Thousands in Ohio face insurance hurdles when seeking prostheses or orthoses designed for sports, play, or recreation—devices often deemed “not medically necessary.” The Ohio chapter is actively pushing for legislative change to remove these barriers. They’ve shared powerful stories from families, athletes, and adults who’ve faced high costs and repeated denials.

Challenged Athletes Foundation (CAF)

The Challenged Athletes Foundation is a national nonprofit dedicated to providing opportunities and support to individuals with physical challenges so they can pursue active lifestyles through physical fitness and competitive athletics.

CAF helps remove barriers by funding adaptive sports equipment, travel expenses for competitions, and training grants. Whether you're a beginner looking to get involved in local activities or an elite athlete training for national and international events, CAF offers a community and resources to help athletes of all ages and abilities thrive.

Their programs include youth-focused initiatives and mentorship opportunities, making them an excellent organization for families exploring adaptive sports and looking for inspiration.

Jordan Thomas Foundation

The Jordan Thomas Foundation supports children and teens with limb differences by providing prosthetic devices at no cost to families. As kids grow and their needs change, the foundation continues to cover new prosthetics and fittings, helping them stay active and confident. Their mission is centered on restoring mobility, independence, and opportunity for youth across the country.

Amputee Blade Runners

Amputee Blade Runners is a nonprofit organization that provides running-specific prosthetics to amputees who want to stay active and pursue sports. These specialized prosthetics are often not covered by insurance. The group works with children and adults to build mobility and confidence through custom prosthetic solutions and athletic coaching.

YCS (formerly ECRN+)

YCS, previously known as ECRN+, is part of the YMCA of Central Ohio. It supports families with children who have developmental delays, disabilities, or health care needs—from infancy through early childhood.

Their services include early intervention (0–3), developmental screenings for preschoolers, family support, SPARK (school readiness), Stable Families programs, and lending adaptive equipment like walkers, sensory tools, and feeding chairs. They also host community events like adaptive kayaking, hiking, and inclusive play groups.

YCS empowers over 2,000 Ohio families each year by helping navigate therapies, community resources, and school readiness. You can contact them at (614) 389‑3880 or visit their headquarters at 1907 Leonard Ave, Columbus, OH 43219.

Amputee Coalition

The Amputee Coalition is a national organization providing education, advocacy, and peer support for people with limb loss or limb difference. Their Facebook page shares useful news, programs, and virtual events.

Fibular Hemimelia and Amputation Awareness

This Facebook group is focused specifically on families navigating fibular hemimelia and amputation. It’s been a helpful place to hear real stories and learn what to expect from other families who have walked a similar path.

Support Group for Parents of Child Amputees

This Facebook group offers a safe and supportive space for parents, caregivers, and families of child amputees (ages 0–18, with support extended up to 21 years old). It’s designed to be a family-friendly community where the well-being and safety of children come first.

Members share advice, ask questions, and offer encouragement to one another as they navigate surgeries, prosthetics, daily life, and emotional challenges. It’s a great place to connect with other families who understand the unique journey of raising a child with a limb difference.

Fibular Hemimelia Support

Another great group on Facebook is the Fibular Hemimelia Support community. The group shares advice on surgeries, prosthetics, therapies, and long-term outcomes for children and adults with fibular hemimelia.

CHILD – Children Having Infant Limb Deficiency

CHILD is a Facebook group for parents of children born with limb differences. The conversations often center on early development, adaptive equipment, and support during those early months and years.

Paralympic Games

The Paralympic Games Facebook page is an inspiring place to follow elite athletes with disabilities and limb differences. It’s a good reminder for kids and families that limb difference does not limit potential.

NubAbility Athletics

NubAbility is a nonprofit focused on building confidence in kids with limb differences through organized sports camps. Their community is full of empowering stories and opportunities.

NUBTribe

NUBTribe is a smaller, supportive Facebook community for parents and caregivers. It’s more personal and discussion-oriented, often sharing emotional and practical advice.