These groups and organizations have been helpful for asking questions, finding community, and learning how other families have handled similar challenges. We grouped them by how you might use them: Ohio and nearby connections, broader community organizations, and online Facebook communities.
For early childhood services and other practical resources, see our Support & Community Resources page. For prosthetic funding help, see Care Teams & Providers. For camps we have tried, see Camps & Programs.
Ohio & Nearby
Nub Club of Ohio
Nub Club of Ohio is a local community for kids with limb differences and their families. The group hosts casual get-togethers, playdates, and events around Central Ohio. It is a good way for kids to meet others like them and for families to connect in person.
Byonic Limb Loss Support Group
Byonic is a Central Ohio support group for amputees and their families. The group was started by amputee Timothy Wilson and focuses on connection, encouragement, and helping people navigate life after limb loss. They also host community events, including an annual Limb Loss Awareness Picnic.
We took Gwen to their picnic in the spring and had a great time. There were a lot of amputees there, along with families, prosthetic providers, and other local resources. Gwen loved being around so many other people with prosthetics, and it was another great opportunity for her to see that she isn't alone.
Gwen at the Byonic Limb Loss Awareness Picnic.
The Amputee Center
The Amputee Center is a physical gathering space in Parkersburg, West Virginia, for people with limb loss or limb difference and their families. It sits in the Mid-Ohio Valley, just across the river from southeast Ohio, so it can be a useful in-person option if you want more than an online group.
They offer peer visits, social mixers, fitness opportunities, and a resource wall with printed information to take home. Prosthetists and therapists sometimes use the space for classes and events too. Some of their amputee fitness offerings are free for amputees (and a caregiver can often join). Hours and schedules change, so check their website for what is open right now.
So Every BODY Can Move (Ohio)
So Every BODY Can Move (Ohio) is a grassroots advocacy effort working to improve insurance coverage for activity-specific prosthetic and orthotic care. Many families run into denials for devices meant for sports, play, or recreation because they are labeled “not medically necessary.” The Ohio chapter pushes for legislative change and shares stories from families and athletes dealing with those barriers.
Organizations & programs
LIM359
LIM359 (Living In Motion 359) brings people with limb loss or limb difference together through group activities rather than traditional discussion-only support groups. Friends and family are welcome. They also run a youth activities camp for kids with limb loss or limb difference, siblings, and children of adults with limb loss or limb difference. Most programming has been based in Colorado, but their approach and events can be useful to know about. Follow them on Facebook.
Limb Difference Collective
Limb Difference Collective is an Illinois-based nonprofit that supports children with limb differences and their families. Their website includes articles, podcasts, family stories, and resource guides on prosthetics, adaptive products, camps, sports, medical care, and everyday life. Many in-person events are in the Chicago area, but the online information is useful to families anywhere.
Amputee Coalition
The Amputee Coalition is a national organization offering education, advocacy, and peer support for people with limb loss or limb difference. Their Facebook page shares news, programs, and virtual events.
Challenged Athletes Foundation (CAF)
The Challenged Athletes Foundation helps people with physical disabilities pursue active and athletic lives. CAF can help with adaptive sports equipment, competition travel, and training grants, including youth-focused programs and mentorship. Worth looking into if your family is exploring adaptive sports.
Disabled&
Disabled& is a community for disabled creatives founded by April Lockhart, a fashion advocate and public speaker with a limb difference. They host in-person events like back-to-school makeovers, fashion retreats, and seasonal gatherings, often in Nashville or New York, focused on connection and creativity.
Online Facebook communities
Fibular Hemimelia and Amputation Awareness
This Facebook group is focused on families navigating fibular hemimelia and amputation. It has been a helpful place to hear real stories and learn what to expect from other families who have walked a similar path.
Fibular Hemimelia Support
The Fibular Hemimelia Support group shares advice on surgeries, prosthetics, therapies, and long-term outcomes for children and adults with fibular hemimelia.
Support Group for Parents of Child Amputees
This Facebook group is for parents, caregivers, and families of child amputees (ages 0 to 18, with support sometimes extending to 21). Members share advice on surgeries, prosthetics, daily life, and the emotional side of raising a child with a limb difference.
CHILD (Children Having Infant Limb Deficiency)
CHILD is a Facebook group for parents of children born with limb differences. Conversations often center on early development, adaptive equipment, and support in those early months and years.
NUBTribe
NUBTribe is a smaller Facebook community for parents and caregivers. It tends to be personal and discussion-oriented, with both emotional and practical advice.